It’s been far too long since our last get-together and I hope everyone is doing well! Life has been a whirlwind for us, with Carter juggling two ice hockey teams and a roller hockey team, swim lessons for both boys, and our usual chaos that comes with daily life. Now we have added PSR andContinue reading “Catching Up and Reflecting on Life”
Tag Archives: specialneeds
Fragile X and Seizures
Hi All!! It has been too long and I truly apologize! Things have just been so crazy with life, work, and the Fragile X Resource Center of Missouri. The last time we were together I was telling you about Jackson starting school and our trip to visit EBK at Rush University…man that seems like agesContinue reading “Fragile X and Seizures”
Chicago Trip, Sentence Strips, Oh My!
I just looked at the last time I blogged and holy cow…things have been a little busy here! So, let’s get to it! From The end of July until September I was busy working on our Annual Fragile X Walk. Every year we hold a walk at a local park here in St. Louis toContinue reading “Chicago Trip, Sentence Strips, Oh My!”
Navigating Special Education in Public Schools
Today I wanted to share our experiences with navigating Special Education in our public school system in hopes to help others with what questions to ask the school and things to consider when filling out paperwork. Back in October, Jackson phased out of First Steps and rolled into the public school system. Based on hisContinue reading “Navigating Special Education in Public Schools”
FXS Potty Training @ 3 and a Professional Update
When we last got together we talked about different terms you might hear when you learn about Fragile X Syndrome. I wanted to throw some of those out there to set the stage for an update I am going to share. You always hear that you should not compare yourself to others, but it isContinue reading “FXS Potty Training @ 3 and a Professional Update”
Dentist Appointment Update
Bright and early this morning we took Jackson to the Dental Anesthesia office to have him put under, so we could get dental x-rays and also fill two cavities on the backs of his upper front teeth. The staff was very friendly and talked us through everything. Dan and I went back with Jackson andContinue reading “Dentist Appointment Update”
Dentist Appointments
Tonight I am sitting here with Jackson soaking up all the happy moments he is having. Normally something sets him off for no apparent reason and head banging ensues, but tonight he has been in such a great mood from the time that I picked him up at school and I am loving every minuteContinue reading “Dentist Appointments”
Let’s Talk Behaviors
Hi all! I hope you are doing well and staying warm and healthy! We had snow this past weekend, so our oldest was super happy to be able to sled for the first time this winter. I was not so happy as I would rather be on a warm, tropical island, but hey, if heContinue reading “Let’s Talk Behaviors”
Assessment Results Are In!
Happy Friday everyone!! I will cut right to the chase. We met with the school district yesterday to talk through Jackson’s Special Education Assessment results and he QUALIFIES!!! Jackson will continue to receive therapy services through the school district upon hitting his 3rd birthday and phasing out from the First Steps Program. We walked throughContinue reading “Assessment Results Are In!”
Special Education Assessment Update
Hi all! I hope you had a nice long, holiday weekend! I want to apologize that I did not update you all sooner on the Special Education Assessment. That day was crazy!! While Jackson and I were at the assessment, I received a phone call from our kids’ school stating our oldest needed to beContinue reading “Special Education Assessment Update”
Our Fragile Xperience 