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Welcome to Our Fragile Xperience

  • Catching Up and Reflecting on Life

    September 23, 2023 by

    It’s been far too long since our last get-together and I hope everyone is doing well! Life has been a whirlwind for us, with Carter juggling two ice hockey teams and a roller hockey team, swim lessons for both boys, and our usual chaos that comes with daily life. Now we have added PSR and… Read more

  • Fragile X and Seizures

    May 13, 2022 by

    Hi All!! It has been too long and I truly apologize! Things have just been so crazy with life, work, and the Fragile X Resource Center of Missouri. The last time we were together I was telling you about Jackson starting school and our trip to visit EBK at Rush University…man that seems like ages… Read more

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