Catching Up and Reflecting on Life

It’s been far too long since our last get-together and I hope everyone is doing well! Life has been a whirlwind for us, with Carter juggling two ice hockey teams and a roller hockey team, swim lessons for both boys, and our usual chaos that comes with daily life. Now we have added PSR andContinue reading “Catching Up and Reflecting on Life”

Chicago Trip, Sentence Strips, Oh My!

I just looked at the last time I blogged and holy cow…things have been a little busy here! So, let’s get to it! From The end of July until September I was busy working on our Annual Fragile X Walk. Every year we hold a walk at a local park here in St. Louis toContinue reading “Chicago Trip, Sentence Strips, Oh My!”

Navigating Special Education in Public Schools

Today I wanted to share our experiences with navigating Special Education in our public school system in hopes to help others with what questions to ask the school and things to consider when filling out paperwork. Back in October, Jackson phased out of First Steps and rolled into the public school system. Based on hisContinue reading “Navigating Special Education in Public Schools”

Assessment Results Are In!

Happy Friday everyone!! I will cut right to the chase. We met with the school district yesterday to talk through Jackson’s Special Education Assessment results and he QUALIFIES!!! Jackson will continue to receive therapy services through the school district upon hitting his 3rd birthday and phasing out from the First Steps Program. We walked throughContinue reading “Assessment Results Are In!”

Special Education Assessment Update

Hi all! I hope you had a nice long, holiday weekend! I want to apologize that I did not update you all sooner on the Special Education Assessment. That day was crazy!! While Jackson and I were at the assessment, I received a phone call from our kids’ school stating our oldest needed to beContinue reading “Special Education Assessment Update”

Parent Empowerment Program Update

Hey all, sorry we haven’t updated you on our progress with the Parent Empowerment Program in a while. Between quarantine life and both of us still working full time things are a little chaotic in our home as I am sure you all can relate! So, last Thursday we finished week 4 of 12 andContinue reading “Parent Empowerment Program Update”

Public School System Struggles

My entire life I was in a Private School, from a Lutheran Preschool to Catholic Grade School and High School, so trying to navigate the Public School System is a little overwhelming to me, but add in a child with Special Needs and my anxiety is now through the roof! One of the great thingsContinue reading “Public School System Struggles”

Tis the Season – The Good, The Bad, The Sad

Saturday – Dress Rehearsal/Bday Party I honestly could not wait to blog this weekend. Lots happened in such a short amount of time. When we created this blog it was to be a place to share our story, be an outlet to share our feelings, teach others about Fragile X as we learn more, andContinue reading “Tis the Season – The Good, The Bad, The Sad”