It’s been far too long since our last get-together and I hope everyone is doing well! Life has been a whirlwind for us, with Carter juggling two ice hockey teams and a roller hockey team, swim lessons for both boys, and our usual chaos that comes with daily life. Now we have added PSR andContinue reading “Catching Up and Reflecting on Life”
Tag Archives: geneticdisorder
Fragile X and Seizures
Hi All!! It has been too long and I truly apologize! Things have just been so crazy with life, work, and the Fragile X Resource Center of Missouri. The last time we were together I was telling you about Jackson starting school and our trip to visit EBK at Rush University…man that seems like agesContinue reading “Fragile X and Seizures”
Chicago Trip, Sentence Strips, Oh My!
I just looked at the last time I blogged and holy cow…things have been a little busy here! So, let’s get to it! From The end of July until September I was busy working on our Annual Fragile X Walk. Every year we hold a walk at a local park here in St. Louis toContinue reading “Chicago Trip, Sentence Strips, Oh My!”
Our Fragile Xperience Updates
If you were to sum up the month of July the only word I can think of is AMAZING! July is Fragile X Awareness month and we have been so busy spreading awareness, sharing Fragile X facts daily and advocating fiercely. Jackson started his Summer program at his new school and while we were absolutelyContinue reading “Our Fragile Xperience Updates”
FXS Potty Training @ 3 and a Professional Update
When we last got together we talked about different terms you might hear when you learn about Fragile X Syndrome. I wanted to throw some of those out there to set the stage for an update I am going to share. You always hear that you should not compare yourself to others, but it isContinue reading “FXS Potty Training @ 3 and a Professional Update”
Dentist Appointment Update
Bright and early this morning we took Jackson to the Dental Anesthesia office to have him put under, so we could get dental x-rays and also fill two cavities on the backs of his upper front teeth. The staff was very friendly and talked us through everything. Dan and I went back with Jackson andContinue reading “Dentist Appointment Update”
Our Fragile Xperience 