Hey all, sorry we haven’t updated you on our progress with the Parent Empowerment Program in a while. Between quarantine life and both of us still working full time things are a little chaotic in our home as I am sure you all can relate! So, last Thursday we finished week 4 of 12 andContinue reading “Parent Empowerment Program Update”
Tag Archives: fragilexsyndrome
Spread Kindness, Not Germs
I hope everyone is staying healthy and staying home, if at all possible right now. These are definitely crazy times. Within this past week of all hell breaking loose we have had to cancel Grandparents Day at school, cancel a year 4 olds birthday party, cancel a dental checkup, cancel a 4 year old WellContinue reading “Spread Kindness, Not Germs”
Ear Infections, Speech and of course, FRAXA!
Hey all, sorry I haven’t been posting! We had sick kiddos and then I had a business trip and well….life! So, let’s get to it! Unless you have a child with Fragile X, you might not know that Ear Infections are a thing. At one point, Jackson had 4 infections from November until February. HeContinue reading “Ear Infections, Speech and of course, FRAXA!”
Cincinnati Children’s Hospital Here We Come!
Hey all! I hope everyone enjoyed their holidays with friends and family. We survived all the craziness…barely, but it was a nice time to visit with everyone and catch up. Now that we are in the new year, we are eagerly awaiting our trip to Ohio and cannot wait to share with you everything weContinue reading “Cincinnati Children’s Hospital Here We Come!”
Our Fragile Xperience 