Hi all! I hope you are doing well and staying warm and healthy! We had snow this past weekend, so our oldest was super happy to be able to sled for the first time this winter. I was not so happy as I would rather be on a warm, tropical island, but hey, if heContinue reading “Let’s Talk Behaviors”
Tag Archives: fragilex
New Year, New Words!
Happy New Year, All!! I hope you and your families are safe and healthy as we start a new year. As we move into 2021, we have witnessed some great things with Jackson’s development! He is talking a ton!!! Jackson has been saying things like, “Da”, “Ma”, “Carter”, “Grandma”, “Grandpa”, “Pa”, “Va” and even saidContinue reading “New Year, New Words!”
Let’s Talk About Rights
Hi all, I hope you are still safe and healthy as we rapidly approach the holidays and the end of what has been an interesting year, to say the least. I have debated on posting this for a while now, but after further considerations and hearing more and more comments, I found I could notContinue reading “Let’s Talk About Rights”
Assessment Results Are In!
Happy Friday everyone!! I will cut right to the chase. We met with the school district yesterday to talk through Jackson’s Special Education Assessment results and he QUALIFIES!!! Jackson will continue to receive therapy services through the school district upon hitting his 3rd birthday and phasing out from the First Steps Program. We walked throughContinue reading “Assessment Results Are In!”
Emotional Breakdown or Emotional Breakthrough?
My entire life I was raised in religion. I went to a Lutheran Preschool, I attended Vacation Bible School with my neighbors at their Baptist Church, I was in Catholic School from Kindergarten through High School, so I am not new to religion. I will admit that after being in a private school my wholeContinue reading “Emotional Breakdown or Emotional Breakthrough?”
Parent Empowerment Program Update
Hey all, sorry we haven’t updated you on our progress with the Parent Empowerment Program in a while. Between quarantine life and both of us still working full time things are a little chaotic in our home as I am sure you all can relate! So, last Thursday we finished week 4 of 12 andContinue reading “Parent Empowerment Program Update”
Genetic Testing
We recently had our monthly meeting with our Parents as Teachers provider and during our session I mentioned something that has been on my mind for months…”I feel like a pioneer in regards to children with Fragile X Syndrome and partial methylation.” Fragile X Syndrome is the leading known genetic cause of autism and intellectualContinue reading “Genetic Testing”
Ear Infections, Speech and of course, FRAXA!
Hey all, sorry I haven’t been posting! We had sick kiddos and then I had a business trip and well….life! So, let’s get to it! Unless you have a child with Fragile X, you might not know that Ear Infections are a thing. At one point, Jackson had 4 infections from November until February. HeContinue reading “Ear Infections, Speech and of course, FRAXA!”
Not Skipping a Beat
When you have a child with special needs you want nothing more than to make them feel included and as “normal” as possible. As a parent and their advocate you push to ensure you do whatever you can to make that happen. Over the weekend, we started back at the Little Gym. Carter had previouslyContinue reading “Not Skipping a Beat”
Cincinnati Children’s Hospital Here We Come!
Hey all! I hope everyone enjoyed their holidays with friends and family. We survived all the craziness…barely, but it was a nice time to visit with everyone and catch up. Now that we are in the new year, we are eagerly awaiting our trip to Ohio and cannot wait to share with you everything weContinue reading “Cincinnati Children’s Hospital Here We Come!”
Our Fragile Xperience 