Hey all! I hope everyone enjoyed their holidays with friends and family. We survived all the craziness…barely, but it was a nice time to visit with everyone and catch up. Now that we are in the new year, we are eagerly awaiting our trip to Ohio and cannot wait to share with you everything weContinue reading “Cincinnati Children’s Hospital Here We Come!”
Category Archives: Uncategorized
New Year, New Beginnings
2019 was such a crazy year for our family. We continued to push for answers on why Jackson was showing self harm behaviors and developmental delays, as we knew something was not right. We had so many different appointments to get these answers to finally get a diagnosis of Fragile X on August 5th. AContinue reading “New Year, New Beginnings”
Merry Christmas!!
Hey all, as the holidays are rapidly approaching, I wanted to take the time to share some insight. I don’t want this to come off as being rude or pushy. I want this to help inform others to something you might not familiar with when it comes to encountering a special needs child. **Full disclosure,Continue reading “Merry Christmas!!”
Tis the Season – The Good, The Bad, The Sad
Saturday – Dress Rehearsal/Bday Party I honestly could not wait to blog this weekend. Lots happened in such a short amount of time. When we created this blog it was to be a place to share our story, be an outlet to share our feelings, teach others about Fragile X as we learn more, andContinue reading “Tis the Season – The Good, The Bad, The Sad”
6 Month Assessment with First Steps – IFSP
This past week has been 6 months since we got Jackson involved with First Steps. They have been a huge blessing for our family in helping us navigate developmental/intellectual disabilities/delays and we will always be grateful. So, after you have been in the program for 6 months you have a meeting to talk through progressContinue reading “6 Month Assessment with First Steps – IFSP”
Happy 2nd Birthday, Jacks!
The past few days have been a whirlwind! This past Saturday, we celebrated Jackson turning 2 with family and friends. He had such a wonderful day celebrating. His favorite show is Bubble Guppies, so of course that was his theme! When he hears the theme song he will race from any room in the houseContinue reading “Happy 2nd Birthday, Jacks!”
Our Fragile Xperience 