Hi all! First, I hope that you and your families are safe and healthy during these crazy times! I have been working from home the past 2 weeks now and while I love being able to wear leggings/yoga pants and sit on the patio with my laptop on a nice day I am definitely missingContinue reading “Quarantine – Therapy Resources”
Category Archives: Special Needs
Spread Kindness, Not Germs
I hope everyone is staying healthy and staying home, if at all possible right now. These are definitely crazy times. Within this past week of all hell breaking loose we have had to cancel Grandparents Day at school, cancel a year 4 olds birthday party, cancel a dental checkup, cancel a 4 year old WellContinue reading “Spread Kindness, Not Germs”
Genetic Testing
We recently had our monthly meeting with our Parents as Teachers provider and during our session I mentioned something that has been on my mind for months…”I feel like a pioneer in regards to children with Fragile X Syndrome and partial methylation.” Fragile X Syndrome is the leading known genetic cause of autism and intellectualContinue reading “Genetic Testing”
Ear Infections, Speech and of course, FRAXA!
Hey all, sorry I haven’t been posting! We had sick kiddos and then I had a business trip and well….life! So, let’s get to it! Unless you have a child with Fragile X, you might not know that Ear Infections are a thing. At one point, Jackson had 4 infections from November until February. HeContinue reading “Ear Infections, Speech and of course, FRAXA!”
Mental Health and Wellbeing
Today I wanted to take some time to talk about things that people go through daly. Now, this isn’t just something that should resonate with parents of a child with special needs or parents of a typical developing child, but all people. My husband and I both work full time jobs. For me, I canContinue reading “Mental Health and Wellbeing”
Public School System Struggles
My entire life I was in a Private School, from a Lutheran Preschool to Catholic Grade School and High School, so trying to navigate the Public School System is a little overwhelming to me, but add in a child with Special Needs and my anxiety is now through the roof! One of the great thingsContinue reading “Public School System Struggles”
Not Skipping a Beat
When you have a child with special needs you want nothing more than to make them feel included and as “normal” as possible. As a parent and their advocate you push to ensure you do whatever you can to make that happen. Over the weekend, we started back at the Little Gym. Carter had previouslyContinue reading “Not Skipping a Beat”
Cincinnati Children’s Hospital Here We Come!
Hey all! I hope everyone enjoyed their holidays with friends and family. We survived all the craziness…barely, but it was a nice time to visit with everyone and catch up. Now that we are in the new year, we are eagerly awaiting our trip to Ohio and cannot wait to share with you everything weContinue reading “Cincinnati Children’s Hospital Here We Come!”
Turkey Day and 2020 Plans
Turkey Day 2019 Wow, I am so sorry we haven’t posted in a while! Things have been crazy with the holidays, but crazy in a great way. We hosted Thanksgiving which included my mom’s side of the family, part of my dad’s side and my in-laws. It was a great night with lots of greatContinue reading “Turkey Day and 2020 Plans”
What does therapy mean for Fragile X kids?
While some might be upset getting results of Fragile X, I think we were a mixture of emotions. Upset that this meant an uphill battle for our sweet son, but also relieved to know what was causing his delays. Now that we had a diagnosis, we could begin to put a plan together to giveContinue reading “What does therapy mean for Fragile X kids?”
Our Fragile Xperience 