Hello! My name is Lesley. If you stumbled across our blog, chances are you might be on a journey similiar to ours. My husband and I are parents to 2 incredible boys. Our oldest is 3 years old and full of life, has no fears and is such a sour patch kid. Then, there is our youngest, who is 22 months old, sweet as can be and was diagnosed with Fragile X Syndrome on August 5th, 2019.

This blog is not to serve as medical advice…neither of us are physicians. This blog is a place for us to share our stories, experiences, bring awareness to Fragile X and hopefully help others on this journey that will not be easy, but will make you appreciate life that much more.

I would like to believe we will update this blog daily, but let’s be honest…we both have full time jobs on top of raising our 2 children. We will do our best to update at least weekly.

Some topics we plan to discuss:

• Learning I am a carrier of Fragile X
• A Complicated Birth Story
• Delays
• The day our Fragile Xperience began
• Therapy
• And many more