Saturday – Dress Rehearsal/Bday Party I honestly could not wait to blog this weekend. Lots happened in such a short amount of time. When we created this blog it was to be a place to share our story, be an outlet to share our feelings, teach others about Fragile X as we learn more, andContinue reading “Tis the Season – The Good, The Bad, The Sad”
Author Archives: cdcjdc1617
Turkey Day and 2020 Plans
Turkey Day 2019 Wow, I am so sorry we haven’t posted in a while! Things have been crazy with the holidays, but crazy in a great way. We hosted Thanksgiving which included my mom’s side of the family, part of my dad’s side and my in-laws. It was a great night with lots of greatContinue reading “Turkey Day and 2020 Plans”
6 Month Assessment with First Steps – IFSP
This past week has been 6 months since we got Jackson involved with First Steps. They have been a huge blessing for our family in helping us navigate developmental/intellectual disabilities/delays and we will always be grateful. So, after you have been in the program for 6 months you have a meeting to talk through progressContinue reading “6 Month Assessment with First Steps – IFSP”
What does therapy mean for Fragile X kids?
While some might be upset getting results of Fragile X, I think we were a mixture of emotions. Upset that this meant an uphill battle for our sweet son, but also relieved to know what was causing his delays. Now that we had a diagnosis, we could begin to put a plan together to giveContinue reading “What does therapy mean for Fragile X kids?”
Happy 2nd Birthday, Jacks!
The past few days have been a whirlwind! This past Saturday, we celebrated Jackson turning 2 with family and friends. He had such a wonderful day celebrating. His favorite show is Bubble Guppies, so of course that was his theme! When he hears the theme song he will race from any room in the houseContinue reading “Happy 2nd Birthday, Jacks!”
The Results Are In…
On August 5th, 2019, our family was boarding a plan for a 10 day vacation to Grand Cayman. This was supposed to be an incredible trip with our 2 children, brother, sis-in-law, nieces, nephew, mom and dad. We had been planning this trip for a year! As we waited for our taxi to pick usContinue reading “The Results Are In…”
Autism Screening
In July 2019, we took Jackson to his Autism Screening. This appointment was slotted to last 3.5 hours. As a kiddo under 2 years old, having him cooperate for 3.5 hours seemed impossible, but he did incredible. The screening was all play based between him and his doctor. As a parent, it was the longestContinue reading “Autism Screening”
Missing Milestones
As we began our new life as a family of 4 things were absolutely perfect! Carter loved being a big brother and we loved doting on our beautiful boys. As time passed, we started noticing that Jackson was missing ‘typical milestones’. Things like sitting up unassisted, rolling over, crawling and babbling. Honestly, it was hardContinue reading “Missing Milestones”
A Complicated Birth Story
On Thursday, October 19th, 2017 at 11:59 PM, I was experiencing some symptoms that just did not seem right. I don’t want to be too graphic, but at the same time hearing what I went through might help someone else. I was having cramping all across my stomach and back that was lasting for 15-20Continue reading “A Complicated Birth Story”
Learning I was a Fragile X Carrier
In June of 2015, we found out we were pregnant with our first child. This was a time of excitement and celebration! We had talked about wanting to start a family as soon as we got married, so our dreams were coming true quickly! Around our 12-14 week checkup, we were told they could performContinue reading “Learning I was a Fragile X Carrier”
Our Fragile Xperience 