Hi all! We are Lesley and Dan. We are the parents to 2 incredible boys. Carter (5) and Jackson (3). In August 2019, we learned that Jackson has Fragile X Syndrome. Fragile X Syndrome is a genetic condition causing intellectual disability. Upon receiving his diagnosis, our lives turned upside down, so creating this blog was one way we could share our journey and hopefully help others on this path. Some posts will be raw and emotional, some will be celebratory and we hope all will be informative. Thank you for joining us on Our Fragile Xperience.
What People Say
“Some of the most wonderful people are the ones who don’t fit into boxes.”
Tori Amos
“Judging a child who has Special Needs does not define who they are…it defines who you are.”
A Very Special Needs Resource
“Step into my shoes and walk the life I’m living and if you get as far as I am, just maybe you will see how strong I really am.”
Author Unknown
Our Fragile Xperience 