Hi all! I received a lot of feedback from the last post, some were amazing words of encouragement, some were asking how could they help us or any special needs parents in these types of situations. I also wanted to let you know I emailed our school to express my concerns and they were very receptive to everything I said and are working to make adjustments that will help Jackson, us and their staff in our day to day routines. I am currently working on an information sheet about Fragile X and more specifically how it impacts Jackson daily, so they can share it with the ENTIRE staff, not just his teachers and spread awareness.
So, first of all, for the amazing words of support and encouragement…thank you! You have no idea what those words mean to us and they might seem small to you, but to us they mean the world!
Next, how can you help a Parent to a Special Needs Child? There are so many ways and I actually found an article that I think sums up a lot of what I would say on my own that you can check out here https://www.verywellfamily.com/what-special-needs-parents-need-4151158.
In all honesty, the simplest of things like asking, “Can I help you with anything?” if you see a parent with their hands full and they are struggling is a huge help. That is something we can do for anyone, not just a Special Needs Parent and it helps immensely. Most people will not ask for help, they are too proud or don’t want to put anyone else out, so if you see someone that could use help ask them how you can.
Spread kindness
XOXO
Our Fragile Xperience 