Hi all! First, I hope that you and your families are safe and healthy during these crazy times! I have been working from home the past 2 weeks now and while I love being able to wear leggings/yoga pants and sit on the patio with my laptop on a nice day I am definitely missing daily interactions with friends and family. We have FaceTime, which is great, but just not the same as being face to face.
The last time we talked we had just learned how our therapy services were being suspended until they could figure out other arrangements. Since then, Blue Stars, who is AMAZING has put together a plan to provide Jackson an hour a day of virtual services and to make up the additional 3 hours he usually gets we will use for phone calls/FaceTime between our therapist and myself and Dan to talk through progress/goals/next steps.
Parents as Teachers has also reached out and we will keep our monthly sessions going virtually as well. Again, so awesome! The one thing I am really unhappy with is First Steps of Missouri. Within his year…not even a full year of receiving services through them, there was zero communication from his case coordinator, which has changed a total of 3 times at this point. I actually reached out to his Speech Therapist who works through First Steps to let her know that Jackson’s school was closing and it was then she informed me that they were suspending services as well and that someone should be reaching out to me. So, if I didn’t text her at that point, I would not have known what was happening with First Steps….the organization that is in charge of handling all of our services between them and Blue Stars. I understand these are unprecedented times and I can only imagine the utter chaos all these organizations are facing, but at the same time of being a parent of a child with special needs that only gets these services so many years it is frustrating.
I hope all of you are surviving these chaotic times while soaking up the family time! I have to remind myself these are days we can make so many memories and be as creative as we want. Take time to FaceTime family and friends, send snail mail as a way to keep in touch and an activity for your kiddos, check in on your neighbors, of course, while keeping your distance and most of all Spread Kindness!
XOXO
Our Fragile Xperience 