I hope everyone is staying healthy and staying home, if at all possible right now. These are definitely crazy times. Within this past week of all hell breaking loose we have had to cancel Grandparents Day at school, cancel a year 4 olds birthday party, cancel a dental checkup, cancel a 4 year old Well Visit, cancel school, run to 6 stores looking for a can of Lysol….and the madness just goes on and on.
Yesterday we learned that all of Jackson’s Therapy Services have been cancelled for now. This is a big blow to us. He normally gets 8 hours of therapy a week including an additional hour of speech. Now due to folks continuing to spread COVID-19, our son will miss out on weeks of therapy. Another issue with this is that his services are all through First Steps, which will phase him out of the program in October, so all these sessions are crucial to his development. I am honestly tearing up as I type this, because he deserves the whole world and is absolutely one of the sweetest children you will ever meet and to help him in his day to day tasks he needs this therapy.
So during these crazy times and honestly, always…I want to talk about spreading kindness. Yesterday, I created a post on Facebook for Friends to Help Friends. This post was intended for folks to post things they were in need of that they might not have been able to find in stores or online. I had a friend needing toilet paper as she has a family of 7, but folks decided they needed 420 rolls for their family of 2 and cleared out the shelves. I am not saying everyone is hoarding, but is it that urgent to take every single pack off the shelf?? Luckily, I have great friends and someone was willing to give her 12 rolls of toilet paper and didn’t expect anything in return….Faith in Humanity Restored!
I was in need of a can of Lysol…just a can. I went to 6 stores…that was just in 1 day and could not locate any. My reason for needing a can is that with Fragile X, those folks have large, prominent ears, which makes them more prone to ear infections. Any germ or virus that Jackson picks up settles in his ears and turns into an infection. The last 2 that he had caused one of his tubes to clog. Now, try getting into an dr right now….his ENT, a month ago, was booked out until April and now with everything going on we are seeing all of our appointments being postponed until who knows when. So, he gets an oral antibiotic, which doesn’t really help the clog, I use drops, knowing that is also probably not doing anything and hope everything clears up because we cannot get into see a dr at this time. So, when I am looking for 1 can of Lysol it isn’t to turn around and sell for $50-$100 on Amazon or eBay, it is to kill any and all germs that I can in my house, car seats, etc to ensure I am doing my part in keeping not only Jackson, but my entire family safe.
I was also lucky enough to have a great friend that spared me a can of Lysol to keep my family a little safer. Seems crazy to say about a can of disinfectant, but I am grateful to this lovely lady.
As we are all asked to stay home, limit our contact with others, social distance ourselves, I ask you to find ways to help others, if you have the resources to do so. Maybe you were one of the first to race to the store and bought an overabundance of something that you now realize wasn’t necessary, think about sharing with friends or neighbors. You could leave it on your porch for them to pick-up to limit contact, if you have an elderly relative call them or FaceTime them to make sure they are okay. If they need anything offer to help them and drop off on their porch to avoid contact. Spread kindness, not germs. This isn’t just about your or me…this is about ALL OF US. Take care of each other now and always! Be Kind!
XOXO
Our Fragile Xperience 