2019 was such a crazy year for our family. We continued to push for answers on why Jackson was showing self harm behaviors and developmental delays, as we knew something was not right. We had so many different appointments to get these answers to finally get a diagnosis of Fragile X on August 5th.
A few days later we said goodbye to the Matriarch of our family, my grandma. That woman taught me a lot through my life. She was one of the most selfless people I have ever known. During the holidays, she always made sure everyone had a warm meal and a place to go, you didn’t have to be related by blood…to her, everyone was family. Over her 95 years of life, she maintained a huge circle of friends most people would be envious of, I was! But I think one of my favorite traits about her was her zest for life. She loved adventure and traveling. She always had a suitcase packed and was known for saying, “Where are we going?” She was always ready for a new trip, a new adventure and to make lasting memories. She clearly left her mark on my heart.
As we move into 2020, I am ready to make new memories with our amazing boys. I am ready for our trip to Ohio in January to get some more answers on our new journey of Fragile X and help Jackson in any way that we can. I am ready to see all the milestones he will hit, ready to see how much Carter grows into his role as a big brother, see all the new things he will learn this year, and see what the future holds for our little family in general.
I look forward to celebrating holidays with friends and family, making memories, and just living the life we have been blessed with.
I wish all of you and your families health, happiness, unconditional love and the opportunity to make lasting memories, go on those adventures you might have put off before. Seize life!! Happy New Year!
Our Fragile Xperience 