While some might be upset getting results of Fragile X, I think we were a mixture of emotions. Upset that this meant an uphill battle for our sweet son, but also relieved to know what was causing his delays. Now that we had a diagnosis, we could begin to put a plan together to give him the best support system we could.
We had already been a part of First Steps, which is an early intervention system that provides services to families with children, birth to three years of age, with disabilities or developmental delays. So, after we found out that Jacks had Fragile X, his Neuordevelopmental Disabilities Speciality recommended we check out Blue Stars Therapy.
Blue Stars provides in home/school early intervention therapy services for young children with Autism and other developmental delays using the ESDM (Early Start Denver Model). We contacted First Steps to see if they would partner with Blue Stars and we got started right away!
Jackson is getting 8 hours of intensive therapy a week. In such a short amount of time, he has achieved so many milestones. While some people might think the things we celebrate are small, for someone with Fragile X, they are huge! He is starting to babble and can say things like Up and Hi and waving bye bye. He loves to play with bubbles and pop them, while saying Pop! He learns something new every day and to see things click for him is truly incredible.
We are looking forward to all the things he will accomplish and learn in the future and are forever grateful to his therapists, dr’s and teachers!
Our Fragile Xperience 